Entries in consumer generated health and wellness content (23)
Social Engagement Strategies for Consumer eHealth Workshop
mHealth + Telehealth World 2013- World Congress
July 24- 26, 2013 in Boston
Join our 2- hour Workshop to explore Social Engagement Strategies that activate consumers to participate in their health; sharing and tapping into peer lifestyle experiences and gaining expert guidance. You will see what healthcare leaders are investing in today, explore social eHealth opportunities for consumer engagement in the future and discuss how to launch a social strategy within your organization.
During the Workshop,
- Learn about key Social Engagement trends including social segmentation, social connect (programs & experts) and social data
- See examples of Social Engagement Approaches used by Healthcare Innovators; Payers & Providers
- Hear a Case Study of a Provider solution that “meaningfully” engages consumers with a private social community integrated with personalized content and communications
- Participate in a Social Engagement Planning Discussion; Considerations, Approaches and Mobile & Tele-health tie-in Opportunities
- Participate in a Group Innovation Exercise: Collectively define a specific social engagement initiative to positively impact consumer health (Workshop participants shape exercise)
Workshop Leaders:
Sherri Dorfman, MBA, Chief Executive Officer & Consumer eHealth Engagement Specialist, Stepping Stone Partners
Lucy Reynales, Director, Wellness Layers
Shelley Marshall, Web Marketing Manager, PinnacleHealth
Accelerating Consumer eHealth Engagement Strategies
mHealth + Telehealth World 2013- World Congress
July 24- 26, 2013 in Boston
Innovative healthcare organizations are developing comprehensive engagement strategies to support consumers across the care continuum. They are aggressively testing and learning about how to effectively use mobile technology to guide, motivate and support consumers for better health outcomes.
During this session, you will learn about:
- Evolving Consumer Engagement Landscape & Trends
- Engagement in Action and Insights from Innovative Providers & Payers
- NeHC Patient Engagement Framework & Examples at Each Step
- NeHC Consumer eHealth Readiness Tool powered by HealthCAWS- Assessment & Path Forward
Speakers:
Sherri Dorfman, MBA, CEO & Consumer eHealth Engagement Specialist, Stepping Stone Partners
Rose Maljanian, MBA, Chairman & CEO, HealthCAWS
Patients Engage with Data & Tools for Better Health Decisions and Health Management @ Partners' Connected Health Symposium
During the 9th Annual Partners’ Connected Health Symposium, several speakers shared examples about how consumers are taking responsibility for their health by using online and mobile tools. Given the changes in health reform, Providers and Payers welcome patients taking on a more active role in both monitoring and managing their health.
1. Trackers for Self Management:
Susannah Fox presented findings from the latest research by the Pew Internet Project and the California HealthCare Foundation which focused on self-tracking. One interesting insight is the segment of adults who track a “health indicator or symptom”; “62% of adults living with two or more chronic conditions is self- tracking”.
The research also revealed that only one third of all self trackers shared this information with someone and half of those shared with a clinician and the other half with a member of the family, group or a friend.
2. PHR with Mobile Capture of Observations of Daily Living (ODL):
Patricia Flatley Brennan, Professor, School of Nursing, University of Wisconsin, discussed the insights that can be gained by “listening in the moment”. Patricia provided an overview of the Project HealthDesign’s five projects for this second round. I was particularly interested as she described how these projects capture the “words of the patient” about their observations of daily living.
Imagine the tremendous value in sharing the patient’s words not only to help the clinician communicate in a way that resonates with the patient but also to discuss the observation data patterns and their impact on the patient’s live.
After the conference, I reviewed the projects on the Project HealthDesign website to get a better understanding about the tools that were being used by patients. Several projects entail having the person enter the observations into their mobile phone; symptoms for Asthma, pain and energy levels for Crohn’s disease, caregiver stress for high risk babies and moods for Obesity. For the project focused on elders, I was interested to see sensors being used to collect information to monitor their cognitive decline.
3. Online Patient Communities
Right from the beginning, I knew this panel was designed to be provocative- “Online Patient Communities are an effective way to Deliver Care”. Alex Drane, moderator and CVO at Eliza explained the panel's focus on peer to peer patient communities without clinicians.
Shouldn’t this panel really have been titled “Online Patient Communities are an effective way to ‘support’ care”? So much has been written about the strong value that patients receive sharing their experiences.
Taking patient communities to the next level, it would be interesting to consider how one type of patient community differs from another. Is there the same intensity of involvement for different types of conditions? Do patients participant in them mostly when they are diagnosed or do they stay on to give back? Are patients using the tracking tools and sharing with others in the community? Are there examples where clinicians are successfully participating in these patient communities?
Opportunities to Empower Patients with Data & Tools
Healthcare organizations have any opportunity to provide data and tools as resources to support consumer health management. Here are some areas that I am closely watching.
Connecting the Data Dots on Health: As a patient gathers information from the various tracking tools, how can this information be combined with other data about him to provide a more comprehensive picture to guide their collaborative care decisions? As Joseph Coughlin, Director MIT Age Lab asked during his Symposium keynote “Data, data everywhere but where are the drops of actionable knowledge?”
Interjecting Data into the Discussion: When can the patient discuss this information with their care team and get the needed guidance for behavior change? How can this information be incorporated in to a coaching session as the patient discusses the management of her chronic condition? During an intervention, how can this information support the decision discussion?
Measuring the Impact of the Tools: Each organization will need to think about measuring the elements that make the tool actionable. During her keynote on “e” is for Engagement, Susannah Fox shared a few key measures that they captured for the self trackers including the percent that said their data collection “affected a health decision”, led them to “ask a doctor new question or seek a second opinion” and “changed their overall approach to health”.
As organizations continue to evolve their business models and approaches, these data and tools become more important because they effectively engage patients in their own health. In recent discussions with leading organizations, I have heard about their increasing investments in connecting data and tools to bring more insight to the patient to better manage their health with the support of their care team. What is your organization doing to provide truly engaging online and mobile resources for your patients?
Independence Blue Cross Leverages Connected Mobile Health to Drive Employee Engagement
ManyStrong, UnitedHealth’s New Private, Personal Social Community for Actionable Health Support
As soon as he walked through the door at Starbucks, I knew something was terribly wrong. I have known Ben for more than ten years and he has never looked like this. Ben appeared extremely exhausted, had lost his smile and gained a few pounds since our last tea together.
After he dropped his keys on the small round table and sat down next to me, I asked Ben what was happening. His elderly mother had fallen again in her bathroom. Ben had been shlepping her from the hospital to her apartment, running to the pharmacy to change her medication for the third time this week and food shopping to make sure she had what she needed. As I listened to Ben, I wondered how his brother Rob or other family members were helping out. Just because Ben is the oldest child doesn’t mean that he needs to take on all of the responsibility. Caring for his mother day in and day out was taking a toll on my friend’s health.
When he stopped talking to take a breath, I started telling Ben about ManyStrong, the new social community initiative from UnitedHealth Group. ManyStrong is a free new social tool that Ben can use to create an online community to support his mother, Evelyn. When friends and family ask “how can help”, Ben can invite them to Evelyn’s private community which has tools for them to contribute in some way.
Over the past few years, I have worked with many different social communities but this one is different:
Personalized Social Community On Demand: Ben can create a community for the specific purpose of supporting his mother. Within the community, Ben can provide updates and request the help that he truly needs to care for his mother. Knowing Ben, it is easier for him to ask for help this way than it is to pick up the phone to call those who had offered help in the past.
Action Driven Support: By following the link in Ben’s email invitation, friends and family can provide support in their own way. After all, some are a few miles away and others are across the country.
- Financial Support: They can donate money which will be placed on a cash card or purchase a gift card for Evelyn.
- Motivational Support: Her loved ones can leave care messaging to encourage Evelyn on a daily basis, motivating her to get stronger.
- Story Telling For Support: Ben and others in Evelyn’s community can upload pictures and videos to share. Seeing a photo of Evelyn walking after her fall may bring relief to her loved ones. Ben can enter comments that “mom has her dancing shoes ready” which may bring a smile to their faces, easing their anxiety for a moment.
- Physical Support: When Ben adds new requests for help within the ManyStrong community, friends and family can take on the responsibility to make a meal, run an errand to the store, spend time with Evelyn or simply check- in on her. The calendaring feature automatically tracks the need and the person taking on that need for all to see in the community.
ManyStrong Back Story
“We created ManyStrong simply to help people more easily help each other. When people we know get sick, or go through a sudden medical emergency or other serious health event, we naturally want to help them. They are our friends, our families, people we care about. It’s tough to know how to help. And with everything that person is dealing with, it’s hard to find out what you can do to help without putting additional stress on them and their family. That’s where ManyStrong comes in”, explains Kunjorn Chambundabongse (KC), VP Innovation and R&D, UnitedHealth Group.
When serious health issues arise, people turn to online communities for support. Many communities are designed for the individual with the health problem but not necessarily to support the caregiver. In their February 2011 Peer- to -Peer Healthcare research, Pew found 59% turn to family, friends and fellow patients when needing “emotional support in dealing with a health issue”.
How is UnitedHealth providing a unique social community solution? KC clarifies ManyStrong’s differentiation. “Yes there are many communities out there doing pieces of this. Some sites focus on the medical and clinical related side, allowing people to connect with others going through similar illnesses and share treatment data. Other sites focus on the non-clinical side, such as fundraising or keeping people informed through journaling/blogging. And you have many people using the big sites like Facebook, but privacy and security are huge problems with something as serious as health. ManyStrong brings all these tools into one place in a private and secure way, and allows the caregiver community manager to create a safe spot for people to rally together to support a person or family they care about.”
The ManyStrong social community solution can be used to support many different situations such as for a child with the long term illness, a senior aging at home or a co-worker battling a disease. Sometimes companies cannot envision the use cases before launching their offering into the marketplace. KC has thought about the various situations and shares ”we don’t know exactly how people will use Many Strong but we make it our mission to learn from them. When we look at users or potential users of Many Strong, we ask if there is any way that we can make the product better for that family, that community, for the people they’re supporting based on how they’re using it. One community could have hundreds or even thousands of supporters, or it could have a handful of very close supporters.”
What does success look like? KC explains “success to us is about celebrating the actions of people helping one another. Millions of messages of encouragement, millions in donations to families, and millions of hours of volunteered time… so many beautiful and meaningful actions. Success to us is seeing all these actions across our country and across the world, one community at a time.”
During their initial beta phase, UnitedHealth is offering the entire community site for free and is even covering the transaction fee on the donated money. KC describes their evolving business model for the ManyStrong Community. “Eventually we will need to charge small fees to cover bank transaction processing costs. We are also exploring integration with other service providers such as meal delivery, professional in-home care, and other features to provide even more options for people to give. We may earn referral fees from these merchant partners over time. While the site may earn some revenue, our mission is to give back profits to charitable organizations that will further benefit users of ManyStrong.”
Note: December 2013, UnitedHealth discontinued their ManyStrong website.